“Self Portrait” by Katie McDowell (18), New Orleans Center for Creative Arts "An Old Man in Military Costume" by Simone Wuttke (18), Dartmouth College (recent Benjamin Franklin High School graduate) "This oil on canvas painting is inspired by Rembrandt's 'An Old...
Scoliosis often strikes at the toughest age and it can be very overwhelming—especially when bracing is recommended. Will a brace hurt? What clothes do you wear with a brace? Should you tell your friends or classmates about it?
Lora’s story on the previous page is exactly why Scolios-Us was created. The goal of Scolios-us is to ease the transition into the scoliosis world as much as possible by providing kids, teens, and parents with the information and support they need. The Scolios-us website, bracingforscoliosus.org, has videos featuring current and former bracers, blog posts, discussion boards, scoliosis-specific resources, and brace, surgery, and exercise information. We want patients and their families to see they are not alone on this journey. We and so many other resources are here to support them!
Illustrations by Silke Pielsticker
What exactly is scoliosis?
Scoliosis is a common condition affecting many teenagers, especially teenage girls. Scoliosis is a sideways curving of the spine. In addition to the sideways curvature, scoliosis involves rotation of the spine. Adolescent Idiopathic Scoliosis (AIS) is the most common type of scoliosis and occurs most often during the growth spurt right before puberty. The exact cause of the curving is unknown. Girls are more likely to develop scoliosis than boys and tend to have larger curves.
How do I find out if I have scoliosis?
Scoliosis is often found during routine checkups. When you go in for a checkup or have a physical exam, the doctor will ask you to bend forward to observe your spine. This test is called the Adams Forward Bend Test. If you have scoliosis, your back may look uneven. If your back is uneven, your doctor will send you to get an x-ray of your spine. The x-ray will confirm if you have scoliosis, and it can reveal the severity of your scoliosis and the location of your curve.
How can scoliosis be treated?
How the doctor decides to treat scoliosis depends on many factors, including the severity of the curve and the patient’s age. In general, curves less than 20 degrees are observed by the doctor, while curves over 20 degrees are treated with bracing. Physical therapy, specifically Schroth therapy, can also be used to prevent curves from progressing, or getting larger. Doctors typically begin to discuss surgical options if a curve reaches 50 degrees or more.
Do scoliosis curves get worse over time?
Generally speaking, scoliosis curves grow when you are growing. Once your bones finish growing, small to medium curves typically remain stable and do not worsen over time. Larger curves of 50 degrees or more may increase gradually over time. This is why doctors may recommend surgery at that point.
How does bracing work?
The goal of bracing is to prevent curves from getting worse and to avoid surgery. Scoliosis braces are customized to each person. They are made of plastic, and some are lined with foam. They are designed to push against the curve and straighten the spine. The spine is actually straighter when the brace is worn, but once the brace is taken off, the spine normally relaxes into its original shape.
Does bracing hurt?
Bracing should not hurt. At first, it can be a little uncomfortable. However, after a couple of weeks, the discomfort should go away, and bracing becomes a part of everyday life. In order to be effective, scoliosis braces must be worn tightly and for many hours every day. Each doctor has a different protocol, but an average recommendation is to wear the brace for about 18-20 hours per day.
How can I help if I do not have scoliosis?
Be understanding of the scoliosis kids and teens around you! It’s all too common that young people with scoliosis feel isolated from their friends and family because of their scoliosis. Learning about scoliosis and realizing that it can be a difficult thing to go through is the first step to helping those with scoliosis!
Some Great Resources:
Scolios-us is a web-based platform intended to empower scoliosis patients with the tools and resources they need to be successful brace wearers.
bracingforscoliosus.org
Curvy Girls is a network of peer-led support groups that reduce the emotional impact of scoliosis by empowering girls through mutual support and acceptance to become leaders, make healthy lifestyle choices, and improve self-esteem. curvygirlsscoliosis.com
Braced was inspired by author Alyson Gerber’s own scoliosis journey and experiences with bracing.
alysongerber.com/books
Megan Glahn is a born and raised New Orleanian. She is a graduate of Mount Carmel Academy and Louisiana State University. She earned her Master of Science degree in orthotics and prosthetics from Baylor College of Medicine. While in school, she discovered a passion for scoliosis and has since specialized in scoliosis bracing. She currently works as an orthotist in Dallas, Texas, and is the founder of Scolios-us.